Charlie Gard

This my be a controversial post and might cause some people to stop reading my blog. I am not here to deliberately provoke. But I am simply stating my opinion and thoughts.

The disease that Charlie is suffering from is extremely rare. Infact, there are only a handful of known cases around the world. This poses problems for those who are treating him in hospital as trials for medication and treatment will also be in the experimental stage and have no guarantee of success.

The medical staff in the USA that have treated people with this terrible disease have only treated those who were not at the terminal stage as is with Charlie. It is at a point where doctors feel that Charlie should be allow to die with dignity.

When do our emotions stop and clear thinking take precedence? I know when mum was dying it was clear that little could be done for her in the latter stages. I would have done ANYTHING to have her here now. I miss her dearly to this day but one of the things that I as well as other family members had to do was think what was in mums best interests and this is what the courts have explained to Charlie’s parents.

We are only human beings and don’t work miracles. We can only work within the parameters for what we know now as far as medical and scientific research allows us. There isn’t a magic solution for everything.

Raymond Briggs (the author of The Snowman) said that he always tries to write in his books the subject of death. As you know, very sadly the end of the Snowman, he dies. Briggs feels that children shouldn’t be hidden away from death and it should be explained that it’s a very real part of life and I whole-heartedly agree with him.

For someone who has had a very real experience of people dying I have had to look at situations clearly and not let emotions dictate what is in the best interests of the person. Friends, grand-parents, aunts, parents and beloved pets have all died in my lifetime. It is what makes us human to allow us to show utter respect in the last stages of someones life.

Grenfell Tower

As I write this blog post it as has been confirmed that the death toll has now risen to 30. It is such a sad and tragic incident which has left people, rightly so, wanting answers.

What does seem apparent is that residents were demanding that safety procedures should be put in place. People said that they had spoken to the council and they did not listen. How many times have we heard this? I can think of numerous times when residents have expressed concerns about something that’s happening in their area and they council have not listened. It’s all about the money and not about the people.

I have been amazed and taken aback at the the quick mobilisation of the local community. People of all religions and backgrounds working together to help those affected. I saw that and organisation called Islamic Relief were giving out water to those people who needed it.

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Where are the far-right when these things happen? Do they muck in and help? Or do they try to divide, separate and keep communities from working together? Well they have failed. They have failed this time and they will fail again in the future. It will not stop people looking out for one another. It will not stop those, who are from all over the world, living harmoniously with each other. This is what they hate.

I said it on social media and I will say it again. I would rather have 1000 muslims living in my street that ONE EDL, BNP, Britain First sympathiser.

Sometimes 

Sometimes when you are mentally unwell life can seem useless. The perception of you being a burden or a bore.

At the moment, I cannot shake off this feeling, so instead of bending my friend’s ears, I am turning to my writing.

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From the age of 14, Kenneth Williams kept a diary for much of his life. It is an impressive collection that the British Library has recently acquired and a testament to the great man of comedy. But the diaries were his confessional. His ‘other half’, the one you ‘sound off to and the person you usually come home to when your pissed and need to talk.

For many years I have done the same. I live on my own and I often need someone to chat and the diaries over the years also have become my companion. The writing I do for this blog is certainly censored and a diary is a true reflection of one’s state and feelings.

I was thinking back at a time when I didn’t seem to have a care in the world and the person that I was when I was in my 20s is not the person I am now. The depression came a few years after my father passed away, and it hasn’t left me since. So my outlook on life has changed dramatically. I don’t suffer fools gladly (others might disagree) and I don’t spend time, as I should, doing things I actually enjoy.

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More Brexit silliness

I have been thinking about this post for a long time. I have been wondering how to make sense of it all. For someone who is innately miserable and depressive, I am trying to see the good.

I said in my last blog that we need to pull together as a nation and work for the good of everyone. That seems a far away dream at the moment when rolling news items talk of awful incidents of racist attacks on people who are British citizens but were born in a different country than the UK.

Racism and abusive hate speech should be socially unacceptable. It should be condemned right from the beginning from all political parties what every their differences of opinion may be.

The turmoil within the Labour Party adds fuel to the uncertainty. Within times of crisis, it has been said that the country needs an effective opposition to hold the government to account and to ensure that we come out if this crisis as unscathed and intact as we were before Brexit was announced.

We need to reassure each other that things will be okay. There might be some rough moments but those in the communities should reassure the minorities that they are welcome in our country. Our country is better than racism and hate. Despite the lies that have been bandied around by both sides its time for reconciliation and hope.

Decent world

I don’t understand it. I cannot understand it. No matter how many times I have mentioned on Twitter that I want to live in a decent society where far-right extremists are not compatible with a civilised society. Then I am inundated with people with bile and hatred. People trying to justify right-wing policies.

These aren’t people who are in politics as a chosen career but they are repeating the beliefs and words of things that have been said to them by the groups such and EDL, Britain First and the BNP.

I believe in free-thinking and the ability to challenge anything someone says or does. What is their motive? I said in a previous post, take way the establishments and organisations that these people are linked to and what are they like as a person?

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These people are brain-washed. They have had lie after lie drummed into them for such a long time and they do not realise the harm that they are doing. It has now been stated that the accused has links to far-right organisations. They have had people commenting that the person who is accused of the murder is not the person they have seen in TV reports the claim he wouldn’t do that sort of thing. But really how well do we know those people we call friends?

I want to live in a decent world. That means everyone is equal. It shouldn’t mean that a certain group or religion should have first say on things. It doesn’t mean that we chose to feed and house just one race and forget the rest. We treat each other with respect and decency.

So I have decided I won’t comment and argue against these people as it’s futile it’s only when something terrible happens to them as a result of their hate and prejudice does it hit home. I am finding it is causing me to question my own sanity when I keep thinking what have we become as a nation when just being a normal human being in a good country is a struggle.

I really hope one day that they will see how hate and division cause so much pain to so many people.

Giving up (update)

I few weeks I posted a blog about looking towards the future and trying to comprehend life after the death of my mother. The post got me thinking that taking small steps to achieving something was the way forward. I know that from time under the CBT therapist she mentioned about setting smaller goals and putting a step forward in ways I know that could be measured and achievable.

I turned to one of my great loves. Photography? no. Drinking? no. Ogling young men? NO! Just tell us!!!

Food.

It always makes me chuckle when people ask me if I like a certain food as I pat my belly as say I didn’t get this size chomping on sticks of celery. I learned to like all food. It was a given in my household growing up that if you didn’t like what you were given you would go hungry as there was no alternative.

So I decided to make the thing that I really wanted to eat. Gone are the days when people cooked traditional food in the house. It’s now ‘pub food’ or ‘gastronomy delights’ and that sort of crap. I do like meat and I am a fan of the steak and kidney pie. I thought I would try it first rather than the steak and kidney pudding which my grandmother used to make.

So I have cooked and prepared. At the moment the meat is cooking and I have other stuff to do. I haven’t made the pastry from scratch because I don’t want to try everything at the same time and I haven’t made pastry since I was a kid.

A new start

I have been really pissed off with the previous site that I had this blog on. I started the site on new years eve 2005 and I thought I would be using the site until I decided I would end blogging or any other way that might have ended it. But over the past few months I have realised that blogger.com wasn’t going anywhere.

There have probably been one or two real updates to the site in eight years. Apart from the odd site that you may or may not use their aren’t many out there that can survive in this fast moving digital environment. As we know that if a product or a company doesn’t show the willing to refresh and update it brand it is the death knoll for it.

So I have decided to move fredspoon.com over the wordpress. I am impressed so far but I am sure there will be limitations and frustrations like having to pay if you want a really impressive site.

So I am here and I hope those people who have bothered to read the blog over the years have updated their links or however you view this site.