This my be a controversial post and might cause some people to stop reading my blog. I am not here to deliberately provoke. But I am simply stating my opinion and thoughts.
The disease that Charlie is suffering from is extremely rare. Infact, there are only a handful of known cases around the world. This poses problems for those who are treating him in hospital as trials for medication and treatment will also be in the experimental stage and have no guarantee of success.
The medical staff in the USA that have treated people with this terrible disease have only treated those who were not at the terminal stage as is with Charlie. It is at a point where doctors feel that Charlie should be allow to die with dignity.
When do our emotions stop and clear thinking take precedence? I know when mum was dying it was clear that little could be done for her in the latter stages. I would have done ANYTHING to have her here now. I miss her dearly to this day but one of the things that I as well as other family members had to do was think what was in mums best interests and this is what the courts have explained to Charlie’s parents.
We are only human beings and don’t work miracles. We can only work within the parameters for what we know now as far as medical and scientific research allows us. There isn’t a magic solution for everything.
Raymond Briggs (the author of The Snowman) said that he always tries to write in his books the subject of death. As you know, very sadly the end of the Snowman, he dies. Briggs feels that children shouldn’t be hidden away from death and it should be explained that it’s a very real part of life and I whole-heartedly agree with him.
For someone who has had a very real experience of people dying I have had to look at situations clearly and not let emotions dictate what is in the best interests of the person. Friends, grand-parents, aunts, parents and beloved pets have all died in my lifetime. It is what makes us human to allow us to show utter respect in the last stages of someones life.